The Clear cell sarcoma foundation

Newly Diagnosed?

Now that you have this new diagnosis, you are likely to begin researching on your own. What you will find are difficult-to-read publications filled with words that you have never needed to know before. We have included some of those words with definitions below for you. This is certainly not a comprehensive list, but this will get you started. Please remember that it takes time to absorb all of this new information, but you will get it. Don’t hesitate to contact us or others for support. It is good to have a loved one prepared to advocate with you. You are not alone.
Definitions To Know

Find an NCI Cancer Center

Dr. Andrea Hayes-Jordan, MD

"It's important when you've been diagnosed with something rare to get a second opinion, sometimes a third"

Sara's Cure connects people.

"An effort like Sara's Cure is really important to try and connect people"

National Cancer Institute's page on Clear Cell Sarcoma

For Patients

We are a family who cares about the well being of each other. You are not alone.

Clinical Trials

Clinical Trials are the primary way that researchers find out if a new treatment is safe and effective in people.

NCCN

NCCN is dedicated to improving and facilitating quality, effective, equitable, and accessible cancer care so all patients can live better lives.

Guidelines for Patients

Click Here on Guidelines for Patients.

Donate Your Tissue

The single most valuable thing we can do as patients is donate our tissue to research.

Newly Diagnosed?

It’s important when you’ve been diagnosed with something rare to get a second opinion, sometimes a third

Patient Registry

We have officially initiated our patient registry in January, 2020 through the National Organization for Rare Disorders.

Warrior Stories

All of us have a story. Read the stories of our Clear Cell Sarcoma warriors and share your own with the world.

Definitions You Should Know

it's important that we understand these definitions so that we can make the best decisions for ourselves and our family

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