About us
Born from the heartfelt journey of two parents seeking a cure for their daughter Sara, the Clear Cell Sarcoma Foundation (formerly known as Sara's Cure) is a grassroots non-profit organization dedicated to educating and raising awareness about this ultra-rare cancer while supporting vital research efforts.
Our Initiatives
At the heart of our mission is the determination to make Clear Cell Sarcoma survivable through education and groundbreaking scientific research. We believe that collaboration between patients, physicians, and researchers is essential to overcoming this ultra-rare disease. Together, we can work toward finding a cure.
We have a clear vision of the next steps necessary to make a difference in CCS, and are motivated to reach these goals. Learn more about some of our partners and research efforts we are trying to accomplish.
We are dedicated to providing a place for CCS patients and caregivers to come together for sharing and support, while taking an integral step toward better treatments and outcomes. We are a family who cares about the well being of each other.You are not alone.
We are committed to helping bring together physicians knowledgeable about Clear Cell Sarcoma. We want to partner with physicians to offer support and connection with other physicians as well as CCS patients. Since CCS is ultra-rare, it is difficult to access up-to-date information quickly. CCS patients and caregivers have participated in FDA listening sessions, Focus Groups and Industry webinars. CCS is our main focus so please reach out to us, we are here for you.
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